Firstly I want to say, today is a joyous occasion because Prince Harry and Meghan Merkle got married. To the happy couple I would like to say Congratulations and I hope you have a wonderful life together.
I had to get the happy stuff out of the way before I went onto what this blog is about.
I am a 31 year old Autistic, Dyslexic who has Depression and Muscularskeletal issues and live in one of the most expensive cities in the United Kingdom. Life for me is by no means a walk in the park.
I wake up every morning absolutely sore and in pain every day of my life. There has maybe been 3 days in the last 3 years where I have not woken up in pain. I have to take many medications some of which I have to take so that the others do not have an adverse reaction on me and cause me to have a stroke. Just walking to the bus stop in the morning causes me pain and if there is a wall that is high enough for me to sit on easily and get up easily from afterwards I have to use it.
I have had to suffer from abuse on the bus because my disabilities are what’s called a hidden disability and not obvious by the fact of crutches or a wheel chair. I have been called a “fat lazy bitch”, a “hypercondriac” and told that “I should put down the chrisps and get my fucking lazy ass to the gym”. Can you imagine what that is like to hear every day just because I have asked an able bodied person to give up a priority seat so that I can sit down. There have been times that I have just wanted to cry myself to sleep at night wondering what is going to happen.
At work I have to have a Personal Evacuation plan because I cant walk down loads of steps safely. It is a major health and safety hazard. I have had to get a special chair ordered for me so that I am not always having to readjust the way I am sitting.
At home I have to have things that aid me in cooking and even going to the bathroom.
With all the things that are going on including the abuse I get on public transpportation I often find that I am struggling mentally. I find it hard to even get up and go into having a shower every day. I maybe shower once or twice a week. It can be so hard to remain positive when everything is so messed up with my own body. I am often thinking “at 31 this should not be my life”.
With my dyslexia I have to have special software at work which I only wish I had for when I am at home. That way when I am doing things like writing blogs I would be able to listen to the words that I am typing and pick up any errors I make. But this is so expensive.
I am trying to figure out how to survive all that goes on in my body and I have no help. Even worse, my benefits were stopped and that was helping me be able to stay in work 5 days a week. Since then I have had to take out credit cards and over drafts. I have had to take a woke given loan so that I could try and pau off some of the bills I acrued and now loose £500 of my salary every month just to pay it off. This is not the life I wanted to have. but I am stuck. There is no one to help me. I have had a GoFundMe Page to help at least with getting dyslexia equiptment and only two people have donated. No one cares to help someone who has had the world collapse around her.
Life with multiple disabilities is hard. Hopefully on Monday when I goto court to get the money back that was unjustly taken I will suceed.
If anyone feels like they want to help (no pressure) https://www.gofundme.com/dyslexic-equiptement-for-education